Andhra Pradesh Unites to Save 11-Month-Old Girl from Rare Genetic Disorder
In a heartwarming display of community solidarity, the plight of Jampala Mangala Punarvika, an 11-month-old baby girl from Veldurthi in Kurnool district, Andhra Pradesh, has captured the attention and compassion of people across the state. Punarvika is battling spinal muscular atrophy type-1 (SMA-1), a rare and devastating genetic condition that progressively weakens muscles, impairing movement, breathing, and normal life functions.
Massive Fundraising Effort Underway for Life-Altering Treatment
The treatment for Punarvika's condition involves a critical injection that costs a staggering ₹16 crore. In response to her parents' heartfelt plea, individuals from all walks of life have come together, contributing generously to raise ₹10 crore thus far. This collective effort highlights the power of public empathy in addressing urgent medical needs.
Political Leaders Step In to Bridge the Funding Gap
HRD Minister Nara Lokesh has been moved by Punarvika's story, praising her as a "true braveheart" fighting with extraordinary courage. He acknowledged the contributions of thousands of donors and pledged to ensure she receives the remaining ₹6 crore required for the lifesaving treatment. Lokesh has directed his office to coordinate efforts and appealed for continued public support.
Additionally, following intervention by Nandyal TDP MP Byreddy Shabari, the Union Ministry of Health and Family Welfare has extended financial assistance of ₹50 lakh under the National Policy for Rare Diseases (NPRD-2021) scheme. This governmental support underscores the importance of policy frameworks in aiding families facing rare medical challenges.
The Urgent Need for Continued Support
Spinal muscular atrophy is a severe condition that requires immediate and costly intervention to prevent further deterioration. The ongoing fundraising campaign serves as a beacon of hope for Punarvika and her family, demonstrating how community and political will can converge to save a young life. As efforts continue to secure the full treatment amount, the story of this brave child from Andhra Pradesh inspires action and compassion nationwide.
